Resources for Grieving Parents

Websites, Organizations, Online Stores, Support

 

1stBreath.org — Provides education, advocacy, public awareness of stillbirth. Assists families and medical professionals dealing with the death of a baby.

AngelNamesAssociation.org – Nonprofit organization that assists families of stillborn children with financial assistance for end-of-life expenses and counseling services, and funding for stillbirth research.

 

TheRecoveryVillage.com –Each location is led and supported by experienced, highly qualified addiction specialists including board-certified medical directors, addictionologist, licensed mental health counselors, licensed social workers, registered nurses, and more. Collectively, our staff holds over 3,000 professional credentials.

BabiesRemembered.org — website of Wintergreen Press (the Healing Hearts Shop) which offers self-help books for families and Sherokee Ilse & Associates which provides professional consulting to help hospitals and others offer the ‘Gold Standard’ of care.   Support materials and people to help bereaved families and their care givers.

BabyLossFamilyAdvisors.org – Find well trained bereaved parents and professionals who can help guide, mentor, advise, navigate, and understand newly bereaved from as early on as newgiving and throughout the process of birth, meeting, saying goodbye and beyond.   Also a site where people can learn about being trained and certified.

BeNotAfraid.net — an online outreach to parents who have received a poor or difficult prenatal diagnosis.

http://community.babycenter.com/groups/a15155/miscarriage_stillbirth_infant_loss_support
an online outreach to parents who have received a poor or difficult prenatal diagnosis.

CenteringCorp.org – the best online bookstore on grief and bereavement – children, grandparents, pets, and so much more.

CalebMinistries.org — ministers to women and families who have lost a baby through miscarriage, stillbirth, early-infant death, or women who struggle with infertility or who are post-abortive.

FacesofLoss.org – Putting a face on miscarriage, stillbirth, neonatal and other infant losses.   Voices of Loss Pen-Pal Program links baby loss mothers, fathers, or grandparents together. Stories are shared, support is offered helping people feel less alone.  Visitors can search for experiences like their own with an easy search tool.

FaithsLodge.org — A place where those coping with serious illness or the death of a child can find hope and strength for the future.

FirstCandle.org — (800) 221-7437 (24/7 Helpline). Promotes research on causes and prevention, responds to parents, families, professionals, and the general public seeking information and support on stillbirth and SIDS.

Funeralservicesguide.com – “The Funeral Services Guide is a UK based organisation established with the specific aim of providing the bereaved with an all-encompassing, yet practical approach to arranging a funeral, while also coping with the difficult issues associated with bereavement.”

GriefWatch.com – A great internet perinatal bereavement store with many resources, memorial products, advice, and links that can help with perinatal loss

 

GrievingDads.com – A forum for dads who have had a child die to connect and grow.

 

GrieveOutLoud.org — Pregnancy and infant loss support, pen pal support and so much more.

 

HANDonline.org — A resource network of parents, professionals, and supportive volunteers that offers a variety of services throughout Northern California and the Central Valley.

Hannah’s Prayer (Hannah.org) — An organization with Christian emphasis, concentrating on infertility or the loss of a child any time from conception through infancy. Local support chapters, newsletter and pen pal connections.

HealingFromtheStart.com — Promotes guidance for medical caregivers on how to help families when a baby dies.  A must have for all caregivers who want reminders and additional ideas on how to help families.   Offer a free downloadable manual to help caregivers be reminded of specifics on how to help families in the hospital at the time of their loss. 

HealingHeartsShop.com – An online shop that offers gifts, jewelry, beaded items, books, booklets, A-V, and packets for Loss Doulas International Certification candidates   Created by Sherokee Ilse, accepting consignment artists. 

HealingHeart.net — Dedicated to providing grief support and services to parents who are suffering as the result of the death of their child or children.

Heaven’sGain.com — Specializes in providing small baby caskets and burial products for families suffering the loss of a child through miscarriage, stillbirth, or preemie death. 

HiringforHope.org — Seeks to ease the shared emotional, psychological, and financial duress common during times of loss and crisis for job seekers, couples experiencing loss and or obstacles to building their families, and their friends and family members.  Hope to help eliminate their feelings of hopelessness, isolation, and shame, and replace them with renewed hope, opportunity, and a sense of empowerment to control the outcome of their own destinies.

HonoredBabies.org — A loss resource site.

HopeXchange.com — Offers a wealth of information for those who have been impacted by the grief of pregnancy loss.

InfantsRememberedinSilence.org — Nonprofit organization that is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.

Internationalstillbirthalliance.org — International Stillbirth Alliance An international coalition of organizations founded by stillbirth parents, promotes research, raises awareness, educates, and is a network of support for bereaved families.

 

ISPID.org — International Society for the Study and Prevention of Perinatal and Infant Death   Leaders in the world in discovering evidence-based preventative measures for stillbirth and sudden infant death.  Promotes educational workshops/training and holds biennial conferences.

 

LossDoulasInternational.com – Certified Baby Loss Doulas and Postpartum Loss Doulas who act as companions/parent’s advocates to newly bereaved after hearing the news that their baby has, or will, die and during the rest of the process of meeting and saying goodbye to their baby.

MEND.org  (Mommies Enduring Neonatal Death) – A Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.

Miscarriage Association (US)  –A charity offering support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy. www.miscarriageassociation.org.uk

MISSFoundation.org — A nonprofit international organization which provides immediate and ongoing support to grieving families after the loss of a baby. Has support groups, projects, initiatives and so much more.

MissingGRACE.org —  Foundation’s mission is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient-focused prenatal care for all women.

MyBablyAngel.org – Transforming our societies response to pregnancy and infant loss – Offers Support (siblings, parents including ceremony/ritual guidance, grandparents, and community), outreach, free consultations, and more.

NaomisCircle.org  – a ministry to parents who have experienced the loss of a baby at any stage of pregnancy or early infancy. Provides information for families, friends, and care providers, including local support groups and other resources, as well as provides support through monthly support group meetings, online forums, and through care packages provided to local hospitals and doctors’ offices.  Focused on the greater Columbia, South Carolina, but moving to other locations in South Carolina and other states as well.   naomiscircle@gmail.com

NationalShare.org — The mission of Share Pregnancy & Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. They offer FREE baby loss grief packets, a support website, chat room, grief information and many resources to newly bereaved families…as well as caregivers.

 

NowILayMeDowntoSleep.org  — Touch up photography offered in many communities during the hospital experience.   Also offers online Bereaved Family ForumNow I Lay Me Down to Sleep is honored to offer all families an online source for support and healing.

Online support group  —  Christian support online.

PerinatalHospice.org — For families who wish to continue their pregnancies with babies whose lives are expected to be brief.

Perinatal Loss Alert Program –   A simple business card with an accompanying letter of support and explanation offers a brilliant solution to the trauma that often comes going back for the first OB appointment after a baby has died. The card can be handed to the receptionist alerting her to the situation and offering six easy ideas on what she/the staff can do to help.  Some of the advice includes: TAKE me to an exam room right away, ASK about my baby, I am, and forever wil be, a PARENT, and more.  Very affordable, these cards should be given to families when they leave the hospital or put in with a follow-up note or letter soon after the loss.

PLIDA.org — have professional standards for care of bereaved on their website, offers support to perinatal professionals and parent advocates

SIDS-NETWORK.org – Has over 1000 documents on SIDS including information on research, sleeping positions, Apnea, vaccinations, seratonin and so much more.

 

StarLegacyFoundation.org   — Nonprofit that raises funds and awareness so that better technology, education, and research are available to families and health care providers.  Funds raised by the Star Legacy Foundation support stillbirth research and education projects. Collaborates with other organizations extensively, and has many collective efforts recognize many precious stars who have left their own legacies.

SuficientGraceMinistries.org – Provides perinatal hospice, bereavement support, and specially designed memory-making materials for parents who experience the loss of a baby or child.

TheTearsFoundation.org — Non-profit that assists bereaved parents with the financial expenses in making final arrangements for their precious baby who has died. Many of the founders and volunteers are bereaved parents who want to support newly bereaved parents in their time of devastating sorrow. Financial support for funeral expenses – working to create chapters in every state.

 

Trisomy.org — SOFT supports families with babies who have Trisomy 13, 18, and related disorders.

 

Trisomy18.org — Offers decision-making help, support, research, awareness and education.  Help for families, friends, and professionals.  Funds research, works toward prevention, shares up-to-date information.

www.youmadememom.com  — A Kansas City MO support group that helps bereaved mothers who have babies dies during pregnancy or infancy.  

www.walkinsunshine.org – To provide assistance to those who have lost a young child in the NJ area in addition to providing online resources for families all around the world.

 

OTHER RESOURCES

     Gowns:

AngelLayettes.org

ThreadsofLove.org

MaryMadelineProject.org (wedding dresses sewn into christening/burial gowns)

 

starlegacyfoundation.org/patterns/

http://www.nicuhelpinghands.org/

http://mikaylasgrace.com/programs/handmade-items/

http://frontrangeangelgowns.com/

www.mend.org/infantloss-organizations

 Slow it Down/Birth Planning

WintergreenPress.org   (video, literature, and Birth Planners –family scholarships available)

I Hardly Knew You…What Happens Next?  video wintergreenpress.org

Pictures:
Now I Lay Me Down to Sleep   NILMDTS.org

Caskets, Cremains containers, and gifts

HeavensGain.com

AplacetoRemember.com

Elysian Jewels.com (Forever bracelets)

Griefwatch.com

MyForever Child.com

Jewelry for the Soul.com

Glass Mementos.com

Music (for Memorial Services and beyond)

Griefsong.com (Paul Alexander)

Musical Reflections.com (Tami Briggs, harpist)

Music By Naomi.com (Naomi Arnold, pianist, composer, soloist)

 

Memory-making/Jewelry and Other Memory Ideas

www.ProjectSweetPea.org

 www.HeavenBorn.com  (free/minimal priced sweet, small pillows for miscarriage)

www.GriefWatch.com

www.APlacetoRemember.com  – many jewelry options and so much more

Black and white bands to honor those who have passed on.   http://inmourningband.org/

 

 

 

 

Please note that the websites, organizations, resources, ministries, and support groups listed above do not necessarily represent the views and/or beliefs of “Sewing with STEAM, LLC, STEPHANIE GRAMS” . Being included as a resource does not constitute a recommendation or endorsement by Sewing with STEAM, LLC/ STEPHANIE GRAMS.